Welcome to my fundraising page! Your generosity can improve (and even save) the lives of thousands of sarcoidosis patients. Please give what you can to raise awareness, find treatments, and find a cure to this terrible disease.
If you are on this page, you may already know that I suffer from sarcoidosis.
I was diagnosed with neuro-sarcoidosis -- which means it affects my nervous system. In fact, the disease has made itslef a home on my spinal cord. The result is a blockage of signals from my brain the rest of my body. Doctors have been able to control the spread of the disease -- but they do it with strong and dangerous medicines such as chemotherapy -- whose side effects have drastically changed my ability to do the things I enjoy. But without the drugs the results could be much worse.
Hundreds of thousands ofpeople suffer from sarcoidosis -- which can attack virtually any organ in the body -- and for each person, the result is the same -- a fight with a disease that has no known cause or cure.
I'm raising money for the Foundation for Sarcoidosis Research to help them help medical science in finding a cure.
Thank you for your support.
Virginia's Blue Ridge Gran Fondo
The Virginia's Blue Ridge Gran Fondo is a 30, 50, and 80 mile bike ride created to showcase Botetourt's County's rich scenic beauty and it's warm & welcoming communities. We are didicated to helping our community and beyond raise awareness of Sarcoidosis and find treatments and a cure for this terrible disease. Please give what you can. Your generosity will help the Foundation for Sarcoidosis Research impact countless lives.
FSR is actively working with the world leaders in sarcoidosis, investing in innovative, patient-centered research efforts and providing educational resources, support, and opportunities to accelerate research to patients worldwide.
Our Mission
The Foundation for Sarcoidosis Research is the nation’s leading nonprofit organization dedicated to finding a cure for this disease and to improving care for sarcoidosis patients. Since its establishment in 2000, FSR has fostered over $4 million in sarcoidosis-specific research efforts and has worked diligently to provide resources to thousands.
Our Goals
Finding a Cure
FSR provides funding and collaborations for research and initiatives which focus on the understanding of sarcoidosis, addresses the causes of the disease, counters the suffering of patients, and advances the potential for a cure. Through collaborations and partnerships with the pharmaceutical industry, biotech companies, medical institutes and professionals, academic institutes, researchers, and patients from across the globe, FSR is producing game-changing initiatives toward a cure. In the years ahead, the Foundation looks forward to increasing our investment to find innovative breakthroughs which will provide treatments, therapies and a cure for the disease.
Educating and Resourcing Patients and the Public
Patients can be KEY elements in progress toward better treatments and a cure! FSR educates and connects patients with opportunities to become involved by becoming knowledgeable about sarcoidosis research. This includes participating in clinical trials, tissue donation programs, patient registries and shared data for research. FSR also offers annual conferences, webinars and comprehensive educational materials for people across the globe living with sarcoidosis, and connects patients to each other for support and enabling a larger impact. More than 46,000 members from all 50 states and nearly 80 countries have joined our free Stop Sarcoidosis Online Support Community. Thousands more are helped through in-person support groups under the umbrella of FSR. We are committed to informing the public about the disease and the dire need for increased funding, as this will in turn advance research and an understanding of the disease.
FSR believes in the power of many to join forces for true game-changing results in sarcoidosis research. The quality of life – and life itself – of thousands of patients depends on a true collaborative process. Only then will we see true results.