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My name is Savannah Catano and I am almost 14 years old, living with Prader-Willi Syndrome. I started occupational therapy in the NICU and was diagnosed with PWS 2 weeks after birth. I began physical therapy at 6 months old and was diagnosed with scoliosis before my 1st birthday; when I began sitting with assistance. Shortly after, I began torso bracing, then moved onto torso casting every 6 months. I had my first spinal surgery at the age of 7 years, using MAGEC rods. In the summer of 2022 at the age of 11 years, I had full spinal fusion surgery. Since then, a whole new world of sports and freedom has opened up for me. I am so grateful for fundraisers such as these, that help individuals such as myself, that need some extra help.

 

I will be riding my bike in this years Tour de Palm Springs. I appreciate your love and support in my 1 mile bike ride, with my friends; to raise money for nonprofit organizations in the Coachella Valley. Each year the organizers hope to support more than 100 local charities. My first spine surgery as well as my specialty bike, was funded by in kind donations such as these. Your generosity is greatly appreciated, to help others experience the growth that I have.

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My Story

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PledgeReg is the integrated fundraising tool for all athleteReg registration sites: BikeReg, RunReg, TriReg, and SkiReg. The PledgeReg system allows events to have a personalized fundraising page for each participant as well as event-wide and team fundraising.

Learn more about PledgeReg