Funds raised through KKD Gravel go directly to the Flanigan Lab at Nationwide Children's Hospital, which is a 501(c)(3) non-profit organization that Kasners Kick Duchenne have partnered with for this event. The Flanigan Lab at Nationwide Children's Hospital will use your donated money on the Duchenne Muscular Dystrophy (DMD) frontline researching for a cure.
To date, after three years of holding KKD Gravel, it has raised over $34,000 in the fight against DMD!
KASNERS KICK DUCHENNE
The Kasner Family is made up of 4 crazy boys, AJ, Ben, Caleb and Dunky (ABCD), and their parents Sarah and Dan. They reside in South Minneapolis, MN, where they love their neighborhood and thoroughly enjoy the summers where they walk, run or bike wherever they go. AJ and Ben are college-aged and living their best life. Caleb and Dunky are 11 and 9 and are living a life different than any ever dreamed. Nearly 7 years ago, these boys were diagnosed with DMD.
DMD is a progressive, neuromuscular disease that primarily affects boys and is terminal as there is no treatment or cure. The disease happens because these boys are missing dystrophin, which is a necessary protein found in the muscles. With each muscle movement, muscles breakdown and build back up, but Caleb and Dunky's never build back up. So essentially they are losing the ability to move their bodies with each movement they make.
Kids with DMD are usually wheelchair bound by 8 - 12 and have a life expectancy around early 20's. In addition to their physically failing bodies, there are also behavioral issues that come with DMD, which are exacerbated due to the daily steroids they have to take.
Kasners Kick Duchenne was created to advocate for Caleb and Dunky by raising awareness and funds for research of this life-threatening disease in hopes of giving Caleb and Dunky and others battling DMD a long and incredible life!